CNBC’s Becky Quick steps out from behind the anchor desk to share her family’s private battle with her daughter’s rare disease. Through her story and others like it, Quick reveals the stark reality of patients caught between groundbreaking scientific advances and the persistent gaps in funding, access, and support.
Chapters:
00:00 Introduction
01:16 Chapter 1: Rare Disease Hits Home
05:14 Chapter 2: Early Detection
08:15 Chapter 3: Gene Editing
11:09 Chapter 4: Cost to Save a Life
14:15 Chapter 5: Parents as Agents of Change
Host: Becky Quick
Executive Producer: Kelly Lin
Senior Editorial Producer: Brad Quick
Supervising Producer: Katie Kramer
Editors: Candice Goldman, Rich Korn
Camera: David A. Grogan, Marco Mastrorilli, Tara McCurrie, Gerard Miller, Oscar Molina
Additional camera: Mark Aster, Leroy Jackson, Andy Zaremba
Audio: Everett Wong
Senior Motion Designer: Erin Dean
Digital Media Specialist: Rich Marko
Technical Manager: Justin Elmendorf
Production Support by: Leanne Miller
Additional Footage provided by: Jeffrey Allen, Adam Anderson, Biotechnology Innovation Organization, Charles River Laboratories, Cure Rare Disease, John Crowley, Jeremy T. Grant, Florida State University, n-Lorem Foundation, Devin Perfumo
Special Thanks To KC Sullivan, who saw the promise of CNBC Cures before Becky and Matt did. We are grateful for his support.
© 2026 CNBC, LLC. ALL RIGHTS RESERVED.
Join us in advancing awareness and understanding of rare diseases:
http://cnbc.com/cures
» Subscribe to CNBC: https://cnb.cx/SubscribeCNBC
» Subscribe to CNBC TV: https://cnb.cx/SubscribeCNBCtelevision
About CNBC: From ‘Wall Street’ to ‘Main Street’ to award winning original documentaries and Reality TV series, CNBC has you covered. Experience special sneak peeks of your favorite shows, exclusive video and more.
Want to get ahead at work with AI? Sign up for CNBC’s new online course, Beyond the Basics: How to Use AI to Supercharge Your Work. Learn advanced AI skills like building custom GPTs and using AI agents to boost your productivity today. Sign up today: https://cnb.cx/4qKBe6H
Connect with CNBC News Online
Get the latest news: https://www.cnbc.com/
Follow CNBC on LinkedIn: https://cnb.cx/LinkedInCNBC
Follow CNBC News on Instagram: https://cnb.cx/InstagramCNBC
Follow CNBC News on Facebook: https://cnb.cx/LikeCNBC
Follow CNBC on Threads: https://cnb.cx/threads
Follow CNBC News on X: https://cnb.cx/FollowCNBC
Follow CNBC on WhatsApp: https://cnb.cx/WhatsAppCNBC
#CNBC
How Rare Disease Patients Are Rewriting The Rules Of Medicine
source
